There are more than 40 different types of congenital heart defects. Little is known about the cause of most of them. There is no known prevention or cure for any of them. More than 50% of all children born with a congenital heart defect will require at least one invasive surgery in their lifetime.
In the United States, twice as many children die from congenital heart defects each year than from all forms of childhood cancer combined, yet funding for pediatric cancer research is five times higher than funding for CHD.
Think about this: One percent of all babies born will have a heart defect of some sort. That is four times the number of children diagnosed with a childhood cancer. And four times as many will die from their heart disease. Funding for pediatric research is painfully inadequate, even disproportionate, to the child population.
It’s hard to figure out what we can do. Especially when there is simply so much to be done. 1in100 is about helping connect advocates to the people, places and organizations where they can have the greatest impact. We’re still learning as it happens. And recommendations are welcome at every turn.
For now, we’ll be sharing best practices and tools that can help with all varieties of advocacy – state and federal government, non-profits, awareness, hospitals & health centers, research institutions and direct patient/family outreach. Now is the to know more. And do more. #1in00.
Only one penny of every dollar donated to the American Heart Association goes towards congenital heart defect research. Right now, of every dollar the government spends on medical/research funding only a fraction of a penny is directed toward CHD research.