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Comments on: Preview: Washington DC Advisory Committee – Newborns and Children http://1in100.org/preview-washington-dc-advisory-committee-newborns-and-children/ Know More. Do More. Sat, 04 Sep 2010 07:49:16 -0700 hourly 1 http://wordpress.org/?v=3.0.1 By: Melissa http://1in100.org/preview-washington-dc-advisory-committee-newborns-and-children/comment-page-1/#comment-122 Melissa Tue, 30 Mar 2010 06:41:39 +0000 http://1in100.org/?p=107#comment-122 What an awesome way to show your advocacy! I'm am just getting into being an advocate for CHD as my "heart" baby is only 4 months old! What a great article! What an awesome way to show your advocacy! I’m am just getting into being an advocate for CHD as my “heart” baby is only 4 months old! What a great article!

]]> By: Ami http://1in100.org/preview-washington-dc-advisory-committee-newborns-and-children/comment-page-1/#comment-59 Ami Tue, 09 Feb 2010 04:30:48 +0000 http://1in100.org/?p=107#comment-59 Awesome. Thank you. My son has TGA,VSD,ASD..and was almost sent home. Luckily a nurse thought he looked "a little dusky" and did a pulse ox. We live in a rural area, the closest hospital is over 30 minutes away, we shudder at the thought of what could have been. Awesome. Thank you. My son has TGA,VSD,ASD..and was almost sent home. Luckily a nurse thought he looked “a little dusky” and did a pulse ox. We live in a rural area, the closest hospital is over 30 minutes away, we shudder at the thought of what could have been.

]]> By: Shannon http://1in100.org/preview-washington-dc-advisory-committee-newborns-and-children/comment-page-1/#comment-43 Shannon Fri, 22 Jan 2010 21:20:30 +0000 http://1in100.org/?p=107#comment-43 Way to go! Just curious about the *, when it says that the missed cases will be "only vsd's", is that saying that routine exams with stethescope fail to detect vsd's or the pulse ox fails to detect vsd's? I've been curious to know the data on if pulse ox detects vsd's since they're so prevalent. Way to go!
Just curious about the *, when it says that the missed cases will be “only vsd’s”, is that saying that routine exams with stethescope fail to detect vsd’s or the pulse ox fails to detect vsd’s? I’ve been curious to know the data on if pulse ox detects vsd’s since they’re so prevalent.

]]> By: Kristyn LaPres http://1in100.org/preview-washington-dc-advisory-committee-newborns-and-children/comment-page-1/#comment-41 Kristyn LaPres Thu, 21 Jan 2010 18:59:37 +0000 http://1in100.org/?p=107#comment-41 As a mom of 2 daughters who each had Hypoplastic Left Heart sydrome, I strongly agree with everything you have presented. It is far too common to not include in regular postnatal testing and even prenatal. My first daughter was born an angel, diagnosed prenatally, and my 2nd received a heart transplant in April. She is 2 and a half and thriving! http://www.sofineedsaheart.com As a mom of 2 daughters who each had Hypoplastic Left Heart sydrome, I strongly agree with everything you have presented. It is far too common to not include in regular postnatal testing and even prenatal. My first daughter was born an angel, diagnosed prenatally, and my 2nd received a heart transplant in April. She is 2 and a half and thriving!

http://www.sofineedsaheart.com

]]> By: Kris http://1in100.org/preview-washington-dc-advisory-committee-newborns-and-children/comment-page-1/#comment-40 Kris Thu, 21 Jan 2010 15:14:38 +0000 http://1in100.org/?p=107#comment-40 You are a rock star advocate, Annamarie. The CHD cause is lucky to have you. Love, Eve's proud Godmother You are a rock star advocate, Annamarie. The CHD cause is lucky to have you.

Love,
Eve’s proud Godmother

]]> By: taulpaul http://1in100.org/preview-washington-dc-advisory-committee-newborns-and-children/comment-page-1/#comment-38 taulpaul Thu, 21 Jan 2010 04:48:41 +0000 http://1in100.org/?p=107#comment-38 I'm very proud of you. I’m very proud of you.

]]> By: jen http://1in100.org/preview-washington-dc-advisory-committee-newborns-and-children/comment-page-1/#comment-37 jen Thu, 21 Jan 2010 04:40:23 +0000 http://1in100.org/?p=107#comment-37 SOOO well writen. Captivating! Awesome! SOOO well writen. Captivating! Awesome!

]]> By: kristi pena http://1in100.org/preview-washington-dc-advisory-committee-newborns-and-children/comment-page-1/#comment-36 kristi pena Thu, 21 Jan 2010 04:02:31 +0000 http://1in100.org/?p=107#comment-36 this is great!!!!! this is great!!!!!

]]> By: Erin http://1in100.org/preview-washington-dc-advisory-committee-newborns-and-children/comment-page-1/#comment-35 Erin Thu, 21 Jan 2010 03:52:29 +0000 http://1in100.org/?p=107#comment-35 Thanks for writing a great article!! Thanks for writing a great article!!

]]> By: Kristine http://1in100.org/preview-washington-dc-advisory-committee-newborns-and-children/comment-page-1/#comment-34 Kristine Wed, 20 Jan 2010 21:05:53 +0000 http://1in100.org/?p=107#comment-34 I am so freaking proud of you. You are amazing. Absolutely amazing. I am so freaking proud of you. You are amazing. Absolutely amazing.

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