Rockstars
Let’s face it, some doctors, nurses and medical staff are just…well, special. These are the medical professionals who have achieved Rockstar status from heart families around the world. If you are looking for the “been there, done that” referral of who to call on, you might want to check out this roster of Rockstars. Add to the lineup!
LATEST ADDITIONS TO THE ROCKSTAR CIRCUIT: APRIL 21, 2010
Ronald K. Woods, MD, PhD, Chief, Pediatric Cardiothoracic Surgery, Mary Bridge Children’s Hospital & Health Center, Tacoma, WA http://www.multicare.org/home/provider/ronald-k-woods
Matthew V. Park, MD, Pediatric Cardiologist, NorthWest Children’s Heart Care/Pediatrix, Tacoma, WA http://www.nwchc.com/body_mod.cfm?xyzpdqabc=0&id=7&action=detail&ref=10
Dr. Michael Mitchell, Children’s Hospital in Milwaukee
Dr. Larry Weinhaus, Dean Medical Center, Madison, Wisconsin
Dr. Dharam Goel, Children’s Heart Center, St. Johns Mercy Medical Center, St. Louis
Dr. Charles Huddleston, St. Louis Children’s Hospital/Washington University Physicians
The Nurses and staff on 7West and CICU at St. Louis Children’s
Dr. Paul Kirshbaum, Atlanta Children’s Hospital
Dr. Peter Wearden, Children’s Hospital of Pittsburgh, UPMC
Dr Vincent Morell of Children’s Hospital of Pittsburgh, UPMC
Dr. Starnes from USC, Southern California
Gerard Martin, MD, Children’s National Heart Institute & Medical Center, Washington, DC
Elizabeth A. Bradshaw, MSN, RN, CPN, coordinator for the Congenital Heart Disease (pulse ox) Screening Program, Children’s National Medical Center, Washington, DC
Dr. Duncan, Hartford Hospital
James St. Louis, M.D. (and the staff at the PICU at Amplatz Children’s Hospital at the University of Minnesota) Note from Riley’s dad: “Without their skilled hands we probably wouldn’t have had our son Riley for nearly a year. Riley had the Berlin Heart implanted after his heart was attacked by a virus. The device is not without flaws though. Riley passed away on March 1st when he knelt down to play with his trains and one of the tubes from the Berlin ruptured.”
Note from 1in100 (Eve’s family): We know Dr. St. Louis well. He talked us through the perils of surgery when Eve was only 5 days old…that’s when we moved her from the NICU at Riverside to the PICU. No one knew how many hours or days she had left at that point. When she made it over that hurdle, she was almost 12 weeks before we had to seriously talk surgery again. He was awesome through all of it. Especially when ultimately we took Eve to Boston. I think it takes an amazing medical team to say – “we’re REALLY good, but there is someone even better for your daughter and we will collaborate with them”. That was one year ago last week. We are forever grateful.
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LEGACY ROCKSTARS
Dr.Starnes, USC, Southern California
Dr. William Novick – University of Tennessee and Peds Cardiothoracic surgeon for the developing world’s children (International Children’s Heart Foundation).
All of the volunteers; cardiologists, intensivists, anesthesiologists, perfusionists, RTs, PICU nurses for the International Children’s Heart Foundation
Dr. Frank Hanley, Chief, Pediatric Cardiothoracic Surgery. Co-Director, Children’s Heart Center; Lucile Packard Children’s Hospital, Stanford, CA**
Dr. Michael de Moor, Chief, Pediatric Cardiology, Associate Professor, Tufts University School of Medicine
Dr. Kenneth Bloom and all the staff of Pediatric Cardiology Associates of San Antonio affiliated with Congenital Heart Institute of Texas and Methodist Childrens Heart Institute
Dr. David B. Gremmels, MD, Director of echocardiography at Children’s of Minnesota, Minneapolis/St. Paul/ Pediatric cardiologist, Children’s Heart Clinic, Minneapolis
Dr. Sue Berry, Professor, Department of Pediatrics, University of Minnesota
Dr. Michel Ilbawi, Chief of Surgery, Hope Children’s Hospital – Oak Lawn, Illinois
Dr. Andrew VanBergen, Pediatric Cardiologist, the Heart Institute for Children, Hope Children’s Hospital – Oak Lawn, Illinois
Dr. Tarek Husayni, Pediatric Cardiologist, the Heart Institute for Children – Oak Lawn, Illinois
Gia Spiotto, Nurse Practitioner to Dr. Husayni, the Heart Institute for Children – Oak Lawn, Illinois
Dr. Thomas George, University of Minnesota, Neonatal Clinical Service
Mark McCann, Newborn Screening Program, MN Department of Health
Dr. Piero Rinaldo, Director, biochemical genetics lab, Mayo Clinic (MN Newborn Screening Advisory Committee and national ACHDNC Committee)
Dr. Darshak Sanghavi, chief of pediatric cardiology, UMass Medical School
Dr. Crowley, University of Michigan, Mott Children’s Hospital
Dr. John Child, UCLA Adult Congenital Heart Disease Center, Los Angeles
Dr. Mark Plunkett, pediatric surgery chief, Kentucky Children’s Hospital, co-director, Kentucky Children’s Heart Center
The entire UCLA ACHD clinic, University of California, Los Angeles
Dr. William Walsh, M.D., Professor of Pediatrics, Chief of Nurseries, Children’s Hospital Vanderbilt
Dr. Lazaros Kochilas, University of Minnesota Amplatz Children’s Hospital (Pediatric Cardiology)
Dr. Pedro del Nido, Chief of Cardiac Surgery, Children’s Hospital Boston/ Professor of Surgery, Harvard Medical School
Pediatric Cardiology team, University of Virginia
Dr. Burt Bromberg, Children’s Heart Center, St. Louis, MO (Ped. Cardiology and Electrophysiology)
Dr. Edward Bove, Univ. of Michigan-Ann Arbor, MI (Ped. CT Surgery)
Dr. David Bradley, Univ. of Michigan-Ann Arbor, MI (Ped. Cardiology and Electrophysiology)
Dr. Francois Lacour-Gayet, Formerly – Children’s Hospital in Aurora, CO
Dr. Richard Ohye at CS Mott Children’s Hospital (UofM)
Dr. Ralph Delius at Children’s Hospital of Michigan
Dr. Henry Walters at Children’s Hospital of Michigan
Drs Nancy Cutler, Elliott Weinhouse and Thomas Riggs, Beaumont Children’s Hospital (Royal Oak, MI)
Janet McGivern and Leslie Davis – Nurse Clinicians at Children’s Hospital of Michigan
Dr. Emile Bacha – surgeon – Children’s Hospital Boston (soon taking his new post at NY Presbyterian! – April 2010)
Dr. Roger Brietbart – pediatriac cardiologist – Children’s Hospital Boston
ALL the doctors, nurses, and staff in the 8 South CICU and 8 East of Children’s Hospital Boston
Dr. Jamie Lohr, Associate Professor, University of Minnesota, Pediatric Cardiology
Dr. Ted Thompson, University of Minnesota, Neonatology (NICU)
**multiple comments for Dr. Hanley include:
1) Not only is he one of a handful of surgeons who does a sizable number of double switch operation for L-TGA, but he is the world’s foremost expert surgeon for children with multiple aorto-pulmonary collateral arteries (MAPCAs). He performs incredibly detailed, tedious unifocalization procedures in which he creates entire pulmonary artery trees for children with little or no pulmonary arteries. These children have little chance at a normal life without these operations or a heart-lung transplant, and no one does them better or does more of them. He is directly responsible for saving the life of our 4 year old daugther after we had been told there was nothing more than could be done for her at our local hospital.
2) Would so love to see Dr. Frank Hanley at Lucile Packard Children’s Hospital added to this list. He is beyond question one of the most gifted pediatric cardiothoracic surgeons on the planet. I give great kudos to these guys who are able to do the Rastelli-Senning and Rastelli-Mustard surgery and do it WELL (Dr. del Nido and Dr. Ilbawi – on this list, included!)- there aren’t many, and because of him and his gift, my son is here and thriving today!
3) Saint Patrick’s Day, 1994, because of Dr. Frank Hanley doing a double switch procedure in 1995, my baby Santana grew up to be a healthy, happy God fearing Christian boy who is a grateful, appreciative son, skate-board riding fool, a very nice person who is loved immensely by myself and his 4 sisters. Thank You, Lord for creating Dr. Hanley. I love and appreciate you Dr. for doing the Double Switch.
I wonder if Anna Grace’s Dr. Bradley is the same one? http://baasheepbaa.blogspot.com/2010/01/anna-grace-january-12-update-2.html
Dr. Michele Ilbawi, Dr. Andrew Vanbergen, Dr. Sajan, and the entire PSHU staff at Hope Children’s Hospital belong on this list. They are wonderful!
De de Moor is my first rock stat because without him, Andre would not be alive for his surgery with our second rock star – Dr Del Nido @ BCH….
Michael de Moor, MD
Department(s)
Pediatrics
Division(s)
Cardiology
Clinical Specialties
Pediatric cardiology, interventional cardiology
Research Interests
Development of intracardiac devices
Clinical Title(s)
Chief, Pediatric Cardiology
Academic Appointment(s)
Associate Professor, Tufts University School of Medicine
Dr. Michel Ilbawi – Chief of Surgery Hope Children’s Hospital – Oak Lawn, Illinois
Dr. Andrew VanBergen – Pediatric Cardiologist the Heart Institute for Children Hope Children’s Hospital – Oak Lawn, Illinois
Dr. Tarek Husayni – Pediatric Cardiologist the Heart Institute for Children – Oak Lawn, Illinois
Gia Spiotto – Nurse Practitioner to Dr. Husayni the Heart Institute for Children – Oak Lawn, Illinois
Dr. Crowley at U of M Mott Children’s Hospital is my first Rockstar. I kept him as my pediatric cardiologist through college. My second would be Dr. Child at UCLA. It’s hard finding an Adult Congenital Heart specialist and not just a cardiologist. He took one look at my echo, listened to me and knew I needed surgery. Third would be Dr. Plunkett who is now in Kentucky. He was my surgeon and did an amazing job. Yea!!!! The whole staff at UCLA ACHD clinic is amazing and when I was there, the docs at U of M were all amazing too. Can you believe Dr. Crowley was a fellow when I had my first surgery in ’81?
Dr. Emile Bacha – surgeon – Childrens Hospital Boston
Dr. Roger Brietbart – pediatriac cardiologist – Childrens Hospital Boston
And to ALL the doctors, nurses, and staff in the 8 South CICU and 8 East of Childrens Hospital Boston
Thanks Laurie – I hear you. Kelli, who posted on the 7th too lives in Rhode Island. I think they know Dr. Bacha quite well as does Isabelle Oiumette’s family in Boston. Our surgeon there was Dr. del Nido and we would fly across the country for him again. What a great team on the 8th floor there!! I’ll be updating the Rockstars page as soon as we get through the big 100 events on Feb 13. Cheers, A
Dr. Kenneth Bloom and all the staff of Pediatric Cardiology Associates of San Antonio affiliated with Congenital Heart Institute of Texas and Methodist Childrens Heart Institute.
Would so love to see Dr. Frank Hanley at Lucile Packard Children’s Hospital added to this list. He is beyond question one of the most gifted pediatric cardiothoracic surgeons on the planet. I give great kudos to these guys who are able to do the Rastelli-Senning and Rastelli-Mustard surgery and do it WELL (Dr. del Nido and Dr. Ilbawi – on this list, included!)- there aren’t many, and because of him and his gift, my son is here and thriving today!
I second Dr. Frank Hanley.
Not only is he one of a handful of surgeons who does a sizable number of double switch operation for L-TGA, but he is the world’s foremost expert surgeon for children with multiple aorto-pulmonary collateral arteries (MAPCAs). He performs incredibly detailed, tedious unifocalization procedures in which he creates entire pulmonary artery trees for children with little or no pulmonary arteries. These children have little chance at a normal life without these operations or a heart-lung transplant, and no one does them better or does more of them. He is directly responsible for saving the life of our 4 year old daugther after we had been told there was nothing more than could be done for her at our local hospital.
Dr. William Novick – University of TN
Peds Cardiothoracic surgeon for the developing world’s children.
All of the volunteers; cardiologists, intensivists, anesthesiologists, perfusionists, RTs, PICU nurses for the International Children’s Heart Foundation!!
They represent the best of the best in pediatric heart care.
Dr.Starnes from USC, Southern California!!!
dr duncan at hartford hospital is a rockstar to me
Dr Peter Wearden and Dr Vincent Morell of Children’s Hospital of Pittsburgh, UPMC! They are an outstanding team and our our heros!
yay!!! Dr. Lazaros Kochilas!!!! i couldn’t agree more!
dr. paul kirshbaum atlanta childrens hospital. very awesome and caring man.
Dr. Dharam Goel, Children’s Heart Center, St. Johns Mercy Medical Center, St. Louis
Dr. Charles Huddleston, St. Louis Children’s Hospital/Washington University Physicians
The Nurses and staff on 7West and CICU at St. Louis Childrens.
Dr. Michael Mitchell, Children’s Hospital in Milwaukee
Dr. Larry Weinhaus, Dean Medical Center, Madison Wisconsin
I wanted to say I had a son born on Saint Patrick’s Day, 1994, because of Dr. Frank Hanley doing a double switch procedure in 1995, my baby Santana grew up to be a healthy, happy God fearing Christian boy who is a grateful, appreciative son, skate-board riding fool, a very nice person who is loved immensely by myself and his 4 sisters. Thank You, Lord for creating Dr. Hanley. I love and appreciate you Dr. for doing the Double Switch.
I would like to add Dr. James St. Louis and the staff at the PICU at Amplatz Children’s Hospital at the University of Minnesota. Without their skilled hands we probably wouldn’t have had our son Riley for nearly a year. Riley had the Berlin Heart implanted after his heart was attacked by a virus. The device is not without flaws though. Riley passed away on March 1st when he knelt down to play with his trains and one of the tubes from the Berlin ruptured.
Jamie Lohr, Cardiologist at the University of Minnesota Amplatz Children’s Hospital. Amazing care, taking into account the needs of your family, not just in caring for the defect. Her respect for you as a parent is amazing…she will never dismiss a concern you have. She spends time in the lab and is always current on the latest research. If you ask her a question, you know you get a thorough accurate answer. She was recommended to us by a PICU nurse who we are forever indebted to.
Dr. Redmond Burke at Miami Children’s! A rockstar with an amazing back-up band in the CICU.
Dr. Robert Ross (pediatric cardiologist) at Children’s Hospital of Michigan. I cannot describe how amazing his is with my 14 month old son. http://www.childrensdmc.org/?id=242&sid=1
Dr. Hal Walters (Pediatric Heart surgeon) at Children’s Hospital of Michigan.
Dr. Vincent Parnell and Dr. Fredrick Bierman and staff at Schneider Children’s Hospital, NY
I would like to add our favorite primary nurses, Wes Nigon and Clint Williams, Dr. Oliver, Dr. Olsen, and of course our amazing surgeon Dr. Burkhart. All from Mayo Clinic Rochester.
I would love to add Dr. Mark D. Plunkett to this list – again! This man saved my life! When other doctors said nothing more could be done and a transplant wouldn’t come on time Dr. Plunkett defied them and saved my life! He used to be at UCLA Medical Center, which is where I had my surgeries, but he’s at Kentuky University Hospital now. He is an AMAZING surgeon that I would not be living today without. He is incredible.
Dr Lester Permut of Children’s Hospital in Seattle….Also Dr Phat Pham of Swedish Medical Hospital, both of whom saved my baby boy’s life.
Dr. Gary Raff, Assistant Professor of Surgery and Pediatrics (Our amazing surgeon!)
Dr Jeff Van Gundy, Cardiologist (diagnosed Sophias defect prenatally, now a dear friend!)
Barbara Goebel, cardiac nurse. Has been with us every step of the way. Shes just plain amazing.
All at University of California, Davis Medical Center in Sacramento (UCDMC)
Without Surgeon Frank Hanley and his entire staff my daughter wouldn’t have lived. They saved her life and I am so eternally grateful. What I don’t understand is that Hopkins, Children’s in DC and Chop didn’t send us to Hanley nor tell us about him at all. Even after every failed attempt of them to save Eliana. ( She had 2 near death experiences and we thought we had lost her for ever ) Thank God we found him and she lives , no thrives !
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